What’s next for people with lupus
No one knows why lupus occurs, or how to prevent or cure it. But researchers finally are making headway, and a surge in better diagnostic techniques and treatment methods has led to more effective management of the disease and its complications
Lupus Research Institute and other scientists continue to investigate lupus, and are coming closer to finding answers. They’re not only asking basic questions about why lupus happens—why the immune system becomes hyperactive and turns on the body it is supposed to defend from harm—but they’re asking things like…
- how does lupus happen?
- why do so many more women than men get lupus?
- why does lupus sometimes flare, and sometimes go into remission?
- why do so many more women of color develop lupus—and suffer such severe complications and a higher risk of death from the disease?
- what can be done to speed along clinical trials and find new treatments?
The Outlook for People with Lupus
While scientifically still a “black box,” the pace and scope of recent lupus discoveries is heartening. A surge in better diagnostic techniques and treatment methods also has led to more effective management of the disease and its complications.
Just 20 years ago, only 40 percent of people with lupus were expected to live more than 3 years following a diagnosis. Now, with earlier diagnosis, the latest therapies, and careful monitoring, most people with lupus can look forward to a normal lifespan.
Skills to Cultivate if you have lupus
As with so many illnesses, knowledge is power with lupus.Find out how lupus can affect you, so that you can fight lupus in body and mind
Think of educating yourself about lupus as an empowerment skill—one of several that people with a chronic disease consistently find make a big difference in their lives. Other valuable empowerment skills include the ability to:
- Pace yourself, a quality that has to do with knowing your limits.
- Communicate your needs to those who care for you.
- Practice patience to ride out the trying times.
- Organize your medical records and visits to physicians.
- Prioritize your responsibilities in life (rest, exercise, work, family).
- Cultivate a sense of humor to help you through the rough spots.
There is need to raises awareness of lupus and the need for innovative lupus research across the country.
Spread awareness in your community.
Distribute newsletters, brochures, and other literature. Just give us a call and we’ll send some to you!
Spread awareness on the Web.
- Forward Web pages. Use it to email, bookmark, and add pages to your favorite social networking sites.
- Forward electronic newsletters.
Spread awareness of lupus clinical trials—and the need for more volunteers to take part and move the research from the laboratory to new treatments! Many trials are taking place, and many need more volunteers!
- Consider taking part in a lupus trial if you have LUPUS.
- Tell others about ongoing lupus trials